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One small step for interoperability
Epic stated it should participate in a government-led effort to enhance the trade of affected person data throughout America’s byzantine community of well being software program techniques. The corporate introduced that it’s going to search to type a so-called Certified Well being Data Community that makes use of frequent knowledge requirements (known as TEFCA) to trade data on sufferers. Participation shouldn’t be necessary, so getting the assist of an trade large like Epic means the federal government’s effort stands a significantly better probability of working. However we’re nonetheless a really great distance from making a seamless circulation of data that might really put the pursuits of sufferers forward of the well being techniques and software program distributors that maintain their knowledge bottled up.
The pitfalls of pandemic apps
Each stage of the pandemic has include its corresponding set of apps. Smartphones have change into a platform for contact tracing, epidemiological analysis, and particular person Covid-19 danger evaluation, notes a brand new review in Nature Biotechnology — however few apps have made the influence their designers hoped. Pandit, director of Digital Medication at Scripps Analysis Translational Institute and one of many authors on the paper, identified plenty of pitfalls of pandemic-focused apps, together with insufficient privateness rules, low adoption, and a scarcity of knowledge requirements.
He hopes the work will spur extra analysis to find out which digitally-enabled interventions — if any — made a distinction within the pandemic’s trajectory, and incorporate the findings into public well being playbooks. STAT’s Edward Chen has the full story.
Sensible tips about digital privateness
Amid the push to digitize scientific trials and well being care extra broadly, lack of privateness and private autonomy usually take a again seat to perceived advantages similar to comfort and ease of participation. In a new paper, Duke College’s Eric Perakslis seeks to raised outline the potential privacy-related harms and recommend methods to mitigate them. He emphasizes that defending privateness doesn’t simply imply stopping identification theft, it means defending an individual’s proper to self-determination. That latter objective turns into exponentially tougher in a world the place sufferers’ knowledge, even when de-identified, is being aggregated and bought for industrial functions. “The extra knowledge collected on and about an individual,” Perakslis writes, “the better it’s to control that particular person’s conduct by way of focused content material” similar to advertisements that pop on social media websites.
In an atmosphere the place such practices are pervasive and loosely regulated, Perakslis stated purveyors of digitized trials and providers ought to contemplate taking 10 steps to guard sufferers. Amongst them: making certain that agreements with third-party companies stop secondary use of knowledge, limiting the creation of latest affected person accounts to gather knowledge, and auditing algorithms used to research knowledge for accuracy and bias.
Medicare wants higher race and ethnicity knowledge
A brand new report from HHS’s Workplace of the Inspector Common confirmed obtrusive gaps and inaccuracies in Medicare’s knowledge on the race and ethnicity of enrollees — data vital to its said objective of advancing well being fairness. Most of its race and ethnicity knowledge comes from the Social Safety Administration, or is imputed utilizing an algorithm that components in final title, geography, and language desire. However in comparison with self-reported race and ethnicity from a subset of beneficiaries in nursing houses, that data was usually incorrect, particularly for American Indian/Alaska Native, Asian/Pacific Islander, or Hispanic beneficiaries. The report requires CMS to create its personal supply of race and ethnicity knowledge, use self-reported race, and standardize its knowledge assortment.
Optum-izing well being knowledge
- UnitedHealth’s Optum subsidiary is acquiring the U.Ok. well being software program firm EMIS Group for $1.5 billion in money. EMIS makes software program to trace pharmacy and first care providers, which might feed into Optum’s efforts to offer knowledge evaluation to the UK’s Nationwide Well being Service.
- SteadyMD, a business-to-business supplier of telehealth software program, is buying BlocHealth, a clinician licensing and credentialing platform. The transfer will assist SteadyMD extra rapidly recruit and deploy clinicians as a part of a workforce unfold throughout all 50 states.
- Walgreens is launching a clinical trials business that may give attention to serving to with recruitment of various affected person populations and permitting for digital participation and knowledge assortment. It’s teaming up on the hassle with Pluto Well being, which seeks to coordinate well being providers by linking siloed affected person knowledge.
- The AI imaging firm Aidoc raised $110 million in a Sequence D spherical led by TVC and Alpha Intelligence Capital. The corporate plans to make use of the cash to embed its software program platform inside hospital service traces and specialties.
- Swing Therapeutics, which makes digital therapies centered on autoimmune and continual ache circumstances, raised $10.3 million in a Sequence A spherical led by JAZZ Enterprise Companions. The inflow of funding will assist pay for a randomized scientific trial to analyze its remedy for treating fibromyalgia.
- Proximie, the marker of a digital surgical procedure platform, raised $80 million in a Sequence C spherical led by Introduction Life Sciences. The corporate’s first device allowed surgeons to attach just about to working rooms and it’s now constructing providers to compile and analyze surgical procedure knowledge to enhance care.
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