When Alok Tayi’s daughter was born final 12 months, he discovered himself in a spot no guardian needs to be: a new child intensive care unit.
His daughter had been born with respiratory and neurological points. However she was comparatively fortunate — after a surgical procedure this spring at Boston Youngsters’s Hospital, she’s house and wholesome. That wasn’t the case for all the newborns within the NICU. A number of the mother and father Tayi met had been grappling with the information that their youngster had a uncommon, untreatable situation.